​International PBC Day Is 14 September

By The PBC Foundation September 12,2014

This Sunday, September 14 is International PBC Day!

Today, we are proud to recognize International PBC Day. Primary biliary cirrhosis, or PBC, is a rare liver disease that primarily results from autoimmune destruction of the bile ducts. Women account for about 90% of PBC cases.

While the number of people living with PBC is relatively small when compared with liver diseases like Hepatitis C or nonalcoholic steatohepatitis (NASH), the disease has a large impact. PBC is the second most common cause of liver transplants among American women.

Now in its 3rd year, International PBC Day is a special time to raise awareness of the condition and support PBC research. Educating the public and healthcare professionals is critical because the two most common symptoms of PBC, pruritus (itching) and fatigue, are often confused with other health conditions, making diagnosis challenging. Additionally, many PBC patients are asymptomatic.

Alkaline phosphatase (ALP) is the initial measure used to identify PBC risk and diagnosis is often confirmed based on the presence of a positive anti-mitochondrial antibody, or AMA, a marker seen in up to 95% of PBC patients. Thankfully, the hepatology and gastroenterology community's growing understanding of PBC has led to more patients being diagnosed before symptoms develop, but many unmet needs remain.

We hope EASL members will support International PBC Day 2014 and those to come in the future. With your help, we can promote research, education and awareness to improve the lives of the many women and men living with PBC.

View Press Release.