On 28 January, EURORDIS a non-governmental umbrella association of patient organisations and individuals active in the field of rare diseases, will be organising Rare Diseases Day, during which awareness raising events will take place in each participating country.

More information about the Day is available at:

http://www.rarediseaseday.org/article/about-rare-disease-day

In addition, regarding the Rare Diseases Day, EURORDIS is planning to host a one day workshop in Brussels on 1 March 2010 aiming to gather European and national research authorities, policy-makers from the European Commission, the European Medicines Agency (EMEA), representatives from the industry, researchers, patient organisations and the media, in order to push for a future research agenda of the European Union that takes into account the patients perspective.

The results of the EURORDIS survey on patient's involvement in research, will be presented at this event.